Referral to National Highly Specialised Care (NHV) in gendermatoses

Care is provided in collaboration with several specialties, including the Section of Skin and Sexually Transmitted Diseases, Clinical Genetics and Uppsala University Children's Hospital, among others. The gendermatosis team includes a dermatologist, a dermatology nurse and an assistant nurse. A coordinator is also attached to the team.

Please send the referrals to:
Gendermatosteamet, hudmottagningen 
Akademiska sjukhuset 
751 85 Uppsala

Please contact a member of the team before making a referral or for advice:

Coordinator: 018-617 40 97 
Telephone hours are Monday-Thursday 12.45-13.45. 
Email: nhv.hudmott@akademiska.se

A dermatology consultant can be reached via the hospital switchboard 018-611 00 00.

What care constitutes National Highly Specialised Care (NHV)?

Some care for gendermatoses, as described below, constitutes National Highly Specialised Care (NHV) and must be provided at a designated centre.

Counselling, assessment, treatment and follow-up of people with gendermatoses that started in childhood and adolescence. Continued lifelong treatment of these conditions must then be done in consultation with a National Highly Specialised Care (NHV) unit.

Clarification of the definition:

Gendermatoses include, but are not limited to:

• Congenital ichthyosis
• Epidermolysis bullosa
• Pachyonychia congenita
• Darier's disease
• Incontinentia pigmenti
• Severe keratodermas
• Similar conditions with a genetic cause.